Profile

Name

Lilli

Nickname

lilli

Short Bio

I’ve known something was amiss 30+ years ago but no help seeing doctors for this significant weakness that over came me after any stressor. Whether it was a bad cold or a procedure I had to deal with these symptoms as they grew more frequent and more severe. With no thymoma and a droopy eye. No one would listen. Event when my SOB became worse suddenly with still no one would listen . My current neurologist said try Mestinon if u feel better well both know. I took it and felt so much better. No blurry vision, decreased SOB, no more frequent choking, no weakness of legs and arms just making the bed. Hurray!

Year of birth

02121951

Gender

Female

Location

NY

Relationship

Patient

How did you hear about us?

MG Website

How long have you or the person that you are caring for had MG?

30 years

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