[Martin Kristo]

Thank you all for sharing.I was diagnosed three years ago and I just get sick and tired in the literal sense of even attempting to explain without being a cry baby.
I was divorced after 39 yrs. and remarried only now to feel a burden to a lovely compassionate understanding lady. We have been married for 14 yrs. so she has seen both sides of me. We play the hand we are dealt; but I wish others didn’t have to be part of it.
In two weeks I see my neuro Dr. again and have the same hopes of Vyvgart that the previous participant shared.
We feel alone until we read shares from others who really know and experience this disease. Thanks to all of you.

Martin Kristo

[Martin Kristo]

Lou,

Thank you for the post. I have been  treated with Mestinon and Imuran by the V.A.. Bay Pines, Fl. for GMG for three years now. Since Vyvgart has come to market this is the first time I’ve seen it being covered on the V.A. formulary.  I am very interested in following your progress with hopes of maybe using it myself. I have a v.a. appt. coming up May 9th with now my 3rd. neurologist in 3 yrs. They come  and go. It also interests me that your  V.A. neuro. is also teamed up with the  IU Team. Congratulations! How did you manage that?

Good luck,

Marty Kristo

 

 

[Martin Kristo]

Lou,

Thank y

 

 

[Martin Kristo]

I was an infantry grunt , always in the field for 11 months before being medevac’d out. We routinely humped through the oily jungle knowing and watching on occasion the mist of “defoliant” being  dispersed like crop dusters from the sky.

I was diagnosed with melanoma in 2004 on my right scapula area then metastasized to the nodes in my right axilla in 2008. After multiple surgeries and interferon alpha treatments things seem to be in check. Neuropathy worsened.

My MG was diagnosed in May of 2020. I am currently taking Pyridostigmine and Azathioprine through the V.A..

It seems like with so few cases of MG actually being brought to the attention of the V.A. they get passed over. With that said I hope the silent cases of Viet Nam Vets with MG come forward to let them know we would appreciate being heard.

M. Kristo

 

 

 

 

 

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[Martin Kristo]

I was an infantry grunt in the field for 11 months (1969-70) before being wounded in  70. The Agent Orange News letter article written by Michelle Taylor army nurse (1968-69) didn’t  give the specific autoimmune disease  from which she suffers. MG ??.  Having been diagnosed with MG in May of 2020 I like so many of us  wonder what could have brought on this disease.  In addition to the MG  I’ve had metastatic melonoma of my lymphatic system.

Mestinon & Imuran have been my go to drugs and seem to be keeping things (crisis) in check.