Forum Replies Created

  • Kathy

    Member
    January 6, 2024 at 2:57 am in reply to: Any Tips for managing diarrhea from Pyridostigmine

    Sorry you are having this effect. I found that I got better as my body adjusted to the medication. But it took time and I still occasionally have a problem. Speak to your pharmacist. Mine told me that she could give me something to counteract this side effect if I needed it.

  • Kathy

    Member
    October 25, 2023 at 12:19 pm in reply to: Nasal regurgitation

    I try to eat soon after taking Mestinon. Also eat and drink small amounts at a time and slowly.

  • I was prescribed torbramicin cream after cataract surgery. My speech and swallowing were  much worse and I stopped using it after a week. My speech and swallowing improved.

  • Kathy

    Member
    July 5, 2023 at 5:42 pm in reply to: Dysarthria: How Does MG Affect Your Speech?

    <p style=”text-align: left;”>I have dysarthria when I’m tired, stressed and if I talk too much. I wear a personal amp system if I am in a group.  I keep the microphone close to my lips and speak very quietly.
    If my slurring is really bad it helps if I use my hands to press back on my checks and jaw when I speak.</p>

  • Kathy

    Member
    May 24, 2023 at 6:06 pm in reply to: Probiotics for MG

    Thank you SR Prasil for the links.  I am trying to research probiotics as an additional help for my MG symptoms (droopy eyelid, occasional speech, chewing and swallowing impairment, and generalized fatigue). I found a study where bifido might help. I am on Mestinon (4×90 mg per day).  I am trying to avoid the next step which for me is prednisone and iv immuglobulin therapy. I’m a yogurt eater but recently switched brands and found out that my new brand is by far inferior in bifido so I’m going back to my original brand and also starting to drink kefir and taking probiotic pills. I’m hoping to see an improvement within a few weeks.
    Has anyone gone this route?

  • Kathy

    Member
    May 24, 2023 at 6:19 pm in reply to: Homeopathy and Myasthenia Gravis

    “one thing that I have recently started, is the DMAE Dimethylethanolamine. It is an all natural supplement and increase’s the acetycholine in your body.”

    Something I’d like to discuss with my doctor!  Thanks for sharing!

  • Kathy

    Member
    September 5, 2021 at 11:23 am in reply to: Post-vaccine immunity

    I had the antibody test after 2 months from my second jab. I’m on Mestinon. My levels were very high still.