Kathy
Forum Replies Created
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Kathy
MemberJanuary 6, 2024 at 2:57 am in reply to: Any Tips for managing diarrhea from PyridostigmineSorry you are having this effect. I found that I got better as my body adjusted to the medication. But it took time and I still occasionally have a problem. Speak to your pharmacist. Mine told me that she could give me something to counteract this side effect if I needed it.
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I try to eat soon after taking Mestinon. Also eat and drink small amounts at a time and slowly.
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Kathy
MemberJuly 26, 2023 at 10:19 am in reply to: Myasthenia gravis symptoms triggered from a topical (cream, ointment, serum, solution, antibiotic, steroid)?I was prescribed torbramicin cream after cataract surgery. My speech and swallowing were much worse and I stopped using it after a week. My speech and swallowing improved.
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<p style=”text-align: left;”>I have dysarthria when I’m tired, stressed and if I talk too much. I wear a personal amp system if I am in a group. I keep the microphone close to my lips and speak very quietly.
If my slurring is really bad it helps if I use my hands to press back on my checks and jaw when I speak.</p> -
Thank you SR Prasil for the links. I am trying to research probiotics as an additional help for my MG symptoms (droopy eyelid, occasional speech, chewing and swallowing impairment, and generalized fatigue). I found a study where bifido might help. I am on Mestinon (4×90 mg per day). I am trying to avoid the next step which for me is prednisone and iv immuglobulin therapy. I’m a yogurt eater but recently switched brands and found out that my new brand is by far inferior in bifido so I’m going back to my original brand and also starting to drink kefir and taking probiotic pills. I’m hoping to see an improvement within a few weeks.
Has anyone gone this route? -
“one thing that I have recently started, is the DMAE Dimethylethanolamine. It is an all natural supplement and increase’s the acetycholine in your body.”
Something I’d like to discuss with my doctor! Thanks for sharing!
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I had the antibody test after 2 months from my second jab. I’m on Mestinon. My levels were very high still.