[John Stormer]

My MG started at age 66 with diplopia which caused some problems with driving.  I used a patch (not so good) and then glasses with prisms (fair) for several years driving from Maine to TX twice a year.  Then I had eye surgery (essentially the same as for children’s strabismus).    After the surgery I have had no diplopia problems and no problem driving now for about 8 years.  Now at age 80, my myasthenia is essentially asymptomatic while taking only 10mg prednisone every other day (=5mg/day) and one or two 60mg pyridostigmine tabs a day.   About 7  years ago I was started on azathioprine, but after 2 months on it, I developed jaundice from its liver toxicity and went back on the prednisone.

[John Stormer]

I  had my third (full dose) shot 3 weeks ago.  Arm was a little sore.  The next few days felt like I was “coming down with a cold”.  But, did not really limit me in any way.  I did not feel sick or have any significant pain.  No exacerbation of myasthenia symptoms.
I am 80 and have been diagnosed with general myasthenia gravis for 14 years.  I take prednisone.  Dose used to be much higher but is now down to 10mg/48hrs.  Pyridostigmine 2-3 60mg tab/day.
Wearing mask in stores, etc. or crowds seems to be a prudent choice with Delta around.

 

[John Stormer]

I am a Vietnam veteran and was diagnosed with MG in 2007.  I know of two other Vietnam Veterans with MG.

 

[John Stormer]

I assume that all the answers above were for prednisone dosages per day.   I have been taking it for 14  years dosing every other day (not every day).  The theory was that this would reduce side effects.  I have been as high as 40mg /48hrs.  Presently down to 10 mg/48hrs.  Skin thinning and bruising somewhat of a problem, but that may be in part a problem with the 81mg aspirin I have to take every day and my age (79).  There may be some osteopenia but may also be due to age.  Was on azathioprine for a few months until I had a liver toxicity from it.  Had to go back on prednisone.    The good news is that the days I take prednisone my arthritis is less painful.

[John Stormer]

I had the two Moderna shots in January and February.  Only a slightly sore arm with the second.  I only take 10 mg Prednisone every other day plus several pyridostigmine every day.  I was congratulating myself on tapering down to that low dose at -my last neuro appointment.  However, she pointed out that my immune system activity was probably diminishing due to age rather than MG remission (I will be 80 next month – diagnosed 14 years ago).  So, I hope to get a booster soon.

[John Stormer]

I’m still taking the aspirin and haven’t tried to get off it.  I have an artificial aortic valve (TAVR) and the cardiologist insists that I should keep taking it indefinitely.

[John Stormer]

I think taking prednisone every other day (not daily) minimizes side effects.  But, perhaps if one needs very high doses this might not be possible.  I have always taken it every other day.