[Joe Mraz]

I had the same problems, however when I got up to 10 Plasmapheresis 2 to 3 days apart. I was good for 8 months without any Pyridostigmine. I just finished second round of Vyvgart which is great. Be proactive and have your doctor prescribe it immediately. A few months ago I was in crisis, checked myself in hospital in Chicago, was fed via tube for 4 days. After Vyvgart I dropped the Pyridostigmine (Mestinon). My neurologist told me to take it only if I need it. It was affective only for an hour anyway. Now I am taking only 10 mg of Prednisone and nothing else. I lost weight, tough to regain it back. Some neurologists and more proactive than other. Also it may depend what city you live in and the doctors experience. Interesting that people on this forum seek recommendation but do not mention where they live. I am only 72 years old so any inner neurological trigger starts the MG facial, throat, tongue and lips malfunctions. Hope this info helps.

[Joe Mraz]

Today, March 10, 2022 I received an infusion of Vyvgart without any issues so far. I will get 3 more infusions one week apart. I still have the catheter for Plex in case the Vyvgart does not work. As far as I know the medication is FDA approved and supposedly Medicare approved. I have MG in the facial area for 4 years. Went through many Plex infusion which did help me immediately. However when I get the symptoms they arrive within days and I can not swallow food, water and talk little. My tongue gets lethargic and go quiet. During a flair up the mucus that suddenly accumulates in my mouth chokes me so I am careful drinking since all muscles in the mouth and throat fatigue fast. I had my thymus gland removed 6 years ago prior to any symptoms of MG.