Forum Replies Created

  • Joe

    Member
    August 11, 2023 at 5:03 pm in reply to: Thymectomy

    Thank you,I feel a little better about it now.🤞

  • Joe

    Member
    August 11, 2023 at 2:49 pm in reply to: Thymectomy

    Thank you so much.it helps a lot.

  • Joe

    Member
    August 11, 2023 at 11:31 am in reply to: Thymectomy

    Hi Tracy, going for CT on the 15th this month.dont know what to expect.dr is still trying different meds but none working yet.did you have problems after the removal of the thymus gland?

  • Joe

    Member
    September 11, 2023 at 8:07 am in reply to: How have blood donations from others benefited you?

    I just started octagam infusions.has anyone had this? I am mg negative

  • Joe

    Member
    September 1, 2023 at 6:20 pm in reply to: New approved MG treatment for gMG – Vyvgart Hytrulo

    Anyone here of octagam? I’m mg negative and my first infusion.

  • Joe

    Member
    August 14, 2023 at 5:12 pm in reply to: Thymectomy

    Thank you so much for your response.i will find out tomorrow how the CT turns out.i just hope what ever happens they can get it under control.seems to get worse every week.

  • Joe

    Member
    August 11, 2023 at 5:18 pm in reply to: Thymectomy

    Thank you James,I’m not looking forward to surgery.but if it gives me some relief I’ll get it.right now I have ocular mg.driving me crazy but I know there’s people out there that have it worse than me.so I shouldn’t complain.