JACK FLAUGH
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I was diagnosed in 2010- I have had droopy eye, total voice box failure and unable to speak-along with many muscle weakness issues all many kinds. After many, many different types of treatments (too many to list), I now have my MG in a manageable state. I do VVGART 4weekly injections -4 weeks off and then 4 weeks on. This does not full sustain my situation and I take 60mg of Mestinon (Generic) 4 times a day. I still get muscle weakness symptoms of and on-but I am relatively stable currently.
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JACK FLAUGH
MemberJuly 8, 2022 at 9:57 pm in reply to: Have You Had COVID-19 with Myasthenia Gravis? What Was Your Experience?I tested Positive on July 4th -(2 tests) —Â very sore throat, severe headache, some congestion. I woke up on July 6th and I had very little of these effects and as of today, I have no symptoms. I took at an home test an hour ago and still Positive.
I have had Pfizer Covid-19 2 shot and 2 Boosters since the beginning and up until this point I have not had any Covid Symptoms.
I was diagnosed with myasthenia gravis in 2013 and currently living a pretty normal life after many doctors and medicines. Currently I do Soliris infusions every 2 weeks and have weened off all other medicines. I feel very fortunate to have a good Neurologist who is open to discussions.
With all I read on these sites- I am Blessed!