Forum Replies Created

  • KATHY Lopez

    Member
    June 4, 2022 at 2:48 am in reply to: Advice for Stomach Issues Caused by Meds?

    My neurologist ordered me

    Glycopyrrolate which i took for stomach issues from mestinon   I took for about a year with the mestinon and then gradually reduced to zero . Now rarely do i have issues
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  • KATHY Lopez

    Member
    December 29, 2021 at 9:30 pm in reply to: D Symptoms of Myasthenia Gravis

    Decreased energy, dyspnea, dysphagia.

  • KATHY Lopez

    Member
    September 13, 2021 at 2:31 am in reply to: Can You Tolerate Alcohol?

    I don’t drink much, however occasionally a glass of wine or margarita when we go to dinner. I was diagnosed 11/2019 and on MESTINON. Approximately 6m ago after having one glass of wine 5oz? I went to restroom and halfway there out of breath, walking off balanced like I had 10 drinks, face and neck flushed. My son said it was like I had Asian Flush, but I’m Caucasian   After several times thinking it was just a quirk, I now know for whatever reason I can no longer drink alcohol .  I was never a huge drinker in my later years, but just one other thing that’s eliminated

     

     

  • KATHY Lopez

    Member
    July 18, 2021 at 3:52 am in reply to: Cramping and Joint Pain From Mestinon

    Although it comes and goes I get severe muscle spasms or cramps in my inner thighs, groin area, worse than childbirth I swear. Nightly when I lay down my right foot turns in and cramps up until I can get it into a different position. I do the pickle juice (sometimes the pickle! Ha!) it really helps. I was taking some trace mineral drops but was concerned with the magnesium. My neurologist just says it’s the mestinon. I take 120 mg x4 a day. Starting IVIG this week for the first time.