Stanley Martin
Forum Replies Created
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No problem I just received a 90 day supply today in Baton Rouge at Walmart of pyridostigmine
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My vision is getting worse. I take azathioprine 1 time daily 3 1/2and pyridostigmine 2 3x daily
Visions are blurry and eyes water
Speech is like a drunken sailor
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I have the same problem. I have had MG for 5 years.
my need for sleep is unbelievable I can’t sleep at night until about 3 o’clock in the morning and then I sleep until 11 and I get up take my medicine which is Azathioprine 50mg 2 1/2 tablets and my Pyridostigmine 60mg two tablets three times a day and I’m constantly tired. I could sleep all day I need to get up and out of bed. Plus my vision is getting worse and very sensitive to sunlight. My eyes constantly water and itch Thank you. -
I am currently taking for my myasthenia gravis 35 mg tablets once daily of azathioprine and 2 tablets of 60 mg pyridostigmine three times daily, as well as one tablet of lisinopril  5 milligrams daily one tablet of pantoprazole daily one tablet of Metro polo daily one tablet of Met Forman daily three tablets of hydrocodone daily 10 to pre-Gabalin daily 75 mg each along with a bunch of vitamins daily I wind myself off of some of the hydrocodone by cutting back from 3 to 2 daily for a month, and then one for a week and then one every other day with the pre-Gabalin, I cut back to two a month and one a week and then none with the azathioprine I cut back to 2 1/2 for a month and then two for a month. It’s very difficult cutting back because my body keeps on going through the shakes and difficulty sleeping in and have a colon surgery that was botched by a doctor and that’s contributing to pain and I like to sleep along with the myasthenia gravis I’m just living day by day in a lot of pain that’s all but I know God has better plans for me
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I’ve traveled in my car with my service dog from Louisiana to Florida and took plenty of medication with me and had no problems related to myasthenia gravis. However, I do have a colostomy bag that frequently leaks and I had an incident with the bag occurring new return trip where I had to stop clean myself off, clean out my car change my clothes, change the bag, and make sure that my dog did not get into the mess in the car. I’ve also travel by plane to Cleveland Ohio from Louisiana on the return trip. The bag broke again, and I had to clean up the bathroom floors in the airplane along with my clothes, and I had to sit with wet clothes for two hours, but myasthenia gravis is never affected me And affects me mostly at home with swallowing food and what I have to do is because I also have a Soffa guess problems just be patient and eat slow and eat cold food because I can’t eat hot food. It just gags me and I throw it up. I plan on having surgery again this May on my colon. Hopefully this doctor will get things straightened out so I don’t have to worry about bags leaking but myasthenia gravis is not effective and I don’t think it will affect me in the future.
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My speech sounds like I’ve had a few drinks and my tongue gets very sick when I know I need my Mestanon period. I’m now taking Pyridostigmine two tablets, 60 mg three times a day and Azathioprine 2 1/2 tab 50 mg daily
i was getting IVIG infusions monthly but at $8,000 per infusion I could no longer afford them.
so now I just get along and learn to slow down when speaking and try to control my emotions
very difficult but God has plans for me