[Gulshan K Duggal]

Acceptance

bear the situation

Peatience and remain positive

compare yourself with those who are suffering from more miserable  ailments and get solace .

[Gulshan K Duggal]

Hey,

I have gone through the same symptoms three years back and went to even crisis needing ventilator and IN ICU TReatment for about four weeks.Your symptoms and result of ur Achrvtest suggests that it’s MG .You must find a another neurologist who can think in differently than ur present one.

All best renain in high spirits and be positive

Gulshannduggal

[Gulshan K Duggal]

I am a Mg peatient for the last about more than 3 years .On the on set of the Mg ,I went into crisis and remained in ICU for around three weeks.Also remained on ventilator for about four days.I was administered IVG through IV 30 ml per day for five days countinously. Discharged after 1 month and started with mestinon 60 mg 6 times a day along with predinislone 10 mg once a day.The dosage of the drugs were reduced gradually and now I am on Mestinon 60 mg twice a day and azathioprine 50 mg twice a day. My symptoms are under control now.I also feel same side effects like you. Some time very mild , and some much more than mild which makes me uncomfortable at that time.but this last for a shot time .I feel we as MG peatients have to accept the side effect and try to bear it,as we can not stop taking medicines.

All the best to all and keep the spirits high and positive.

[Gulshan K Duggal]

Initially I was also on steroids prednisone but gradually it was tapered off to 5 mg a day along with mestinon 60 mg twice a day and azathioprine 50 mg twice a day. Slowly my Neuro stopped the prednisone completely.F or the last about one year I am on mestinon and azathioprine as above and I am stable.The problems associated with MG affecting quality of life ,will not go completely and MG  Patients  will have to bear these with courage and patience .

you can have this alternative after consulting ur Neuro/GP.

all the best remain cheerful.God bless u