[Diane]

Hi Jodi,

I haven’t had any reactions to the IVIG infusions. Sometimes I get a mild headache that sticks for a day or two.

I had just weaned off of Cellcept due to severe bowel issues and getting a bad fungal infection in my esophagus. I am taking Myfortic in place of the cellcept and was wondering if you have tried this medication and if so if you have had any side effects.

Thank you

Diane

[Diane]

Thank you Shawna for article, and everyone else who has replied. This is all great information that I needed to find about having a port inserted.

 

[Diane]

Thank you Shawna for article, and everyone else who has replied. This is all great information that I needed to find about having a port inserted.

[Diane]

I  am currently 59 years old and have been working full time for 28 years in a high stressed fast past manufacturing job in multiple positions and finally settled down in a payroll administration job up until May 2022.I was diagnosed with MG back in 2007.  I have generalized MG With double vision and muscle weakness in my arms and legs and difficulty swallowing sometimes and it effect my vocal cords quite a bit. but I have been able to work with out missing many days off. I have been able to push through my MG and rest when ever I can. Most of the time my downtime was my weekends and with the help of Mestinon. My thymus glad had been enlarged since the beginning but was growing and effecting my breathing and keeping my MG in a consistent flare up.

last year in May I had to have it removed and a good thing it was! It was cancerous and had to have 30 rounds of radiation. I’m have IVIG infusions every 3 weeks and currently going to physically therapy 2 days a week to help build my strength and mobility.I am still out on disability going on close to a year now.

I am very nervous about my job now because I am not able to get back to my normal routine and work a full time position.

my husband is disabled and I am his main caregiver and heath care holder.

Diane G.