Anne Aloi
Forum Replies Created
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Hi! I am a horse trainer and have had back trouble for over 30 years. Never had surgery but have seen my share of epidural and oral steroids. Diagnosed w MG 4 years ago and it has had no bearing on my back problems. I will say that I continue to do what helps my back and so far that is working. I hope you find relief!
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Thanks all! I’ve read enough to make me afraid. I trust my neuro and if he thinks it’s the best for me, I’m going to try it. I’ll do my best to hydrate, but swallowing is the reason I need it 🤷🏼♀️
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I had a VATS thymectomy 6 months after diagnosis. I had ptosis, dv, trouble swallowing and weakness. I was getting worse by the week. I’m 64, I was hospitalized for less than 48 hours. I believe it changed the trajectory of my disease. I currently live a fairly nl life on Imuran. I was afraid of the surgery but would do it again in a heartbeat! Good luck!
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Diagnosed ~ 4 years ago, ptosis, dv, and trouble Swallowing. Plus strange intermittent weakness/fatigue. My neuro thought thymectomy was “radical”. Prescribed Mestinon and when it didn’t work, “take more”. When I said I wanted to treat the dz , not just manage the symptoms, I started Imuran. I seemed to be getting worse by the week, waking up w DV that lasted for two days. Changed Drs, had a VATS thymectomy(thanks DaVinci) my symptoms started to fade after about 6 months. I’m now living a pretty close to nl life on Imuran. I believe the thymectomy changed the trajectory of my disease, I’m 64 and have no regrets. I was hospitalized for less than 48 hrs.
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Thank you! I’m going to give it a go!