Forum Replies Created

  • James

    Member
    July 20, 2022 at 1:47 pm in reply to: Actual Results using Vyvgart

    Hi,  I’m Jim and I’m about to have my first vyvgart infusion in two days. I am 82, have had this diagnosis for 18 months. It looks like my cellcept might be causing my anemia, so we are hoping the vyvgart will let us ramp the cellcept down, if it works for me. I’m just so weak sometimes. Can’t walk sometimes, other times i can ride the tractor. It’s great hearing from others so please let me hear from you guys! i have felt like i am the only one at times. I drive an hour and a half to a great specialist in Rochester, but even so, I had to ask about using vyvgart myself, and he said sure, let’s try it. The vyvgart nurse manager on tve Argenx site is great, she hooked us up to an organization that is paying my copay!