Sharon
Forum Replies Created
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I feel rare just saying the word when you tell someone that you have myasthenia and they have never heard of it and you tell them it is a RARE autoimmune disease. Â Also since I am Seronegative I really feel rare since only about 10 or 20 percent of people with myasthenia are Seronegative.
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I have been diagnosed seronegative am 72
Would like to join group but do not know how to PM SOMEONE
Please adviseSharon
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I have been diagnosed with seronegative mg
Sharom
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Sharon
MemberAugust 19, 2023 at 12:55 pm in reply to: How does wearing an eye patch for Myasthenia gravis make you feel?After trying mestinon and prograf which did nothing
Was also told prisms would not work got them anyway my
Neuro opthamologist wrote the script and said get them made at a reputable
Eye glass place not Costco or the discount stores
The deal was that if the first perscription did not work the optician would redo
Them for free which did happen but they are great am getting prisms for all my eyeglasses
Have heard the stick on ones do not work well