Forum Replies Created

  • Sharon

    Member
    February 24, 2023 at 2:15 pm in reply to: When Have You Felt Most Rare?

    I feel rare just saying the word when you tell someone that you have myasthenia and they have never heard of it and you tell them it is a RARE autoimmune disease.  Also since I am Seronegative I really feel rare since only about 10 or 20 percent of people with myasthenia are Seronegative.

  • Sharon

    Member
    June 23, 2022 at 11:04 pm in reply to: Seronegative Diagnosis? Please read.

    I have been diagnosed seronegative am 72
    Would like to join group but do not know how to PM SOMEONE
    Please advise

    Sharon

  • Sharon

    Member
    February 12, 2022 at 5:39 pm in reply to: Seronegative Diagnosis? Please read.

    I have been diagnosed with seronegative mg

    Sharom

  • Sharon

    Member
    August 19, 2023 at 12:55 pm in reply to: How does wearing an eye patch for Myasthenia gravis make you feel?

    After trying mestinon and prograf which did nothing

    Was also told prisms would not work got them anyway my

    Neuro opthamologist wrote the script and said get them made at a reputable

    Eye glass place not Costco or the discount stores

    The deal was that if the first perscription did not work the optician would redo

    Them for free which did happen but they are great am getting prisms for all my eyeglasses

    Have heard the stick on ones do not work well