[SBresson]

MG Diagnosis Timeline

In April 2017 I had difficulty breathing at work, went to the ER and checked out ok.  Blood oxygen level good, chest exray, bloodwork….all good.  Back to the ER in July 2017, checked out ok, same as in April.  That started my journey to many doctors, wanting an answer to my breathing problem. I was healthy, I was fine, my numbers were good, etc.  A pulmonologist said I have an elevated diaphram on my right side, and that is the cause of my breathing issue. Then in March 2020 I had a difficulty swallowing and speaking  and continued with ‘losing air’ while talking as I have for three years.  I called my brother who was diagnosed with MG several years before (age early 50’s).  His only symptoms were swallowing and talking.  We never talked about it afterwards as he was doing great on Pyridostigmine three times a day.  No other meds or treatment for it.  I then went to a neurologist.  My bloodwork showed MG (I was 78.5  yrs old when diagnosed).  I am taking Prednisone, Pyridostigmine, and monthly IVIG for MG.  I feel better than I did a year and a half ago and am thankful.  My world is small, I don’t drive, cannot do many things I enjoyed; however, I have benefited greatly in numerous ways from this lifestyle.  I have learned to be content.