Stanley Schildkraut
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I was writing about my experiences in the last 3 weeks.
Why the moderation? -
Thank you Mervin, I visited a new neurologist who’s opinion is he’s the Great and Powerful Wizard.
I’m scheduled for an EMG and a new Single Fiber Optic test at Columbia Presbyterian. The Wizard is so far leaving an unflushed Shiley Port in my chest. I’m in remission, Plasmapheresis worked wonders, my current state of remission is waning, the Plasmapheresis has been stopped. I feel lousy. But the Great and powerful knows all. Thank you for your explanation of remission. Your last lines speak loud and strong
Thank you.                Stanley Schildkraut
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Dear Chris, I must add this to my reply.
I was told this morning my MG is here to stay. This after my years of hearing this. It threw my into a loop.
My wife says I knew this, yet it was like being hit by George Foreman.  Be well and take note from an old timer, smile as often as you can, Stanley Schildkraut
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When I was diagnosed with MG I thought I was the only “One” who had trouble driving.
In the beginning I was pulling off the road almosr everyday and closing my eyez for a while. The rest last maybe half an hour.
Walking down a street was a chore. I felt I looked drunk.
That began in 2009. My neurologist sent my to an ophthalmologist who specializes in mg patients.
It’s 14 years later, the neurologist is gone the ophthalmologist also.
My office was about 45 miles from home.
My vision impairment and muscular weakness getting worse I sold our chemical business.
I’m on plasmapheresis once month, a steroriod 3 timesa day and gabapentin.
I sure would enjoy the mg symptoms leaving for awhile.
If anyone knows a solution ease give me a holler