[Sandra Petty]

Hello Jody,

I wanted to tell you that the pain you have is MG with Fibromyalgia.

I’ve been diagnosed with MG 1994. I was diagnosed with Fibromyalgia

in 2000. Re diagnosed  with Fibromyalgia in 2008. The second doc didn’t

know about the first doctor. When he told me the same thing I was relieved

to really have the answer. The medicine was different from first doc.

Glad to be here. Sandy

 

 

[Sandra Petty]

I also want to be able to get vivgart. I’m having IVIG monthly at 2 days. I haven’t asked my doctor yet about yet.

I’ve had MG sense 1992 diagnosed in 1994. Lots of IVIG, Plasma Exchange, Prednisone up to 80mg a day, I am now 70 years old and still looking for things to keep me going. The last 2 years have been the worst for me. I am moving now, and I can’t help my workers do anything at all, I live on the couch and in the Bed, unless I absolutely have to go.

I have good days that I feel good and do a little more. If I know I’m going some, were I rest the day before.