Forum Replies Created

  • Richard Perez

    Member
    December 28, 2023 at 12:56 pm in reply to: Memory loss

    I to have memory loss one example I forget the name of the person who is helping me fix

    <font color=”rgba(0, 0, 0, 0)” face=”inherit”>a machine we are working </font>together , we I have been working together for 20 years . it may take

    me about 1 to 2 min to remember his name . just little stuff like that I thought it was old ages I am 64 yrs. I will ask my neurology next time.

  • Richard Perez

    Member
    May 13, 2023 at 12:21 pm in reply to: Vyvgart side effects

    Richard Perez

    Started Vyvgart on 3-17-2023 after4 weeks 04-18-2023 no side effect yet. Have been feeling good working 40 hrs week .  Mestinon 3x daily 60mg ,prednisone 10mg once daily , Cellcept 1,000mg 2x daily , I still have numbness around mouth lips ,left side of face comes and goes usually in afternoon that started after my last MG crisis . Thank God and doctors that I feel better .

  • Richard

     

    I was in hospital for 2 month, 1 month ICU after 4 MG crisis’s   could not swallow . Feeding tube down my nose , I didn’t like that .    All this time I was on IGIV on and off didn’t help. They finally

    decided on  Plasmapheresis or Plasma Exchange 4 times once a day , by the 4 day my throat open up I could swallow again I thank GOD .   Plasms Exchange help, now Iam back to working 40hrs, IGIV 3 times a month, prednisone 10mg 1 x day, cellecpt 500mg  2 x a day , mestinon 3 time day 60mg