Forum Replies Created

  • Roy Terwilliger

    Member
    April 21, 2023 at 2:14 pm in reply to: Weaning off medications

    My doctor has always been careful about weaning me slowly from meds.  I started with Mestinon when I was first diagnosed, but we have now stopped it after cutting back over time.  My prednisone has also been cutback slowly and is now down to 8 mg per day.  In no case have I had any side effects.

     

  • Roy Terwilliger

    Member
    September 23, 2022 at 7:52 pm in reply to: Hey all!

    If you are in Mass., contact the Neurology Dept, at St. Elizabeth’s Hospital in Boston.  They are experts in MG.  Roy

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