Forum Replies Created

  • Peggy

    Member
    June 29, 2022 at 8:39 pm in reply to: Seronegative Diagnosis? Please read.

    I am seronegative. Find MG frustrating and overwhelming in the 2 years I have been diagnosed. Running out of treatment possibilities; evidently I am a complicated, but “fascinating case”. It does not help there are no treatments specifically for seronegative.

    Peggy

  • Peggy

    Member
    February 24, 2022 at 9:31 pm in reply to: Do you have Seronegative MG?

    I am seronegative. It is hard enough to have a rare disease with MG, but adding being seronegative  has really discouraged me. I was diagnosed in Feb. 2020 and have had a very rough time all these months with several hospitalizations for MG crisis.

    I am so disappointed they withdrew use of new drug for seronegative patients.

  • Peggy

    Member
    June 29, 2022 at 8:40 pm in reply to: Seronegative Diagnosis? Please read.

    I agree with you 100%.

    Peggy

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