[Paula Simonette]

Hi everyone, I am on my fifth day after my first treatment of Vyvgart. I am continuing to feel a little better each day. I continue to have pain in just right eye with a pulling sensation. This is a symptom that has been ongoing since I was diagnosed in June 2020. I have been to my ophthalmologist and they keep ruling out other things. Just curious if anyone else has this symptom. Sending good vibes to everyone that this new drug helps.

[Paula Simonette]

Hi everyone, I am happy to say that I feel better today. Second day after my 1st Vyvgart fusion. No side effects. I  know it’s early in the process, but I am just so happy to be feeling better.

[Paula Simonette]

Hi everyone, this is my first post. I received my 1st Vivgart infusion yesterday. I am antibody positive. I felt very weak & dizzy all day. Could not sleep. Feel somewhat better this morning. Does anyone know what it’s like to ween off the Prednisone? I can’t wait.

[Paula Simonette]

Hi Teresa, my infusion lasted one hour and then they observed me for another hour. Is That normal? I have been hydrating, living in Arizona has taught me the importance of that. I have an appointment with my neurologist tomorrow. I will find out then about weaning off prednisone. I have been on 20 mg a day since beginning of January. I will let you know what she recommends. Is this how I contact you? I am new to all this. Thank you