Forum Replies Created

  • Phyllis Scullion

    Member
    January 18, 2023 at 6:00 pm in reply to: Have You Had Eye Surgery to Help Your Vision?

    Diplopia was my presenting symptom. It steadily got worse even though I  was taking Mycophenolate ( Mestinon doesn’t help me at all )  Prior to surgery I got to a 35 frenal prism  and now 2yrs post surgery I occasionally need to use glasses with a integrated size 3 prism when I am tired. Surgery was definitely a success for me although it did take time to get to the end of the process it was worth it!

  • Phyllis Scullion

    Member
    February 23, 2022 at 3:54 pm in reply to: The Vaccine: Experience & Side Effects

    I have had MG for just over 7 yrs I had 1st AZ jab in feb 21 severe flu like symptoms nausea and vomiting for 24hrs settled and back to normal after 3 days. 2nd AZ mild flu like symptoms for 24 hrs. 3rd Jab with Pfizer severe flu like symptoms and mild nausea less sever than with 1st AZ settled in 72hrs. 4th jab with Pfizer mild flu like symptoms for 24hrs. Overall I would say it had no obvious impact om my MG possibly more fatigued than usual but fluctuating fatigue is “normal” for me. Although I had 2 bad experiences with side effects it did not dissuade me from having vaccination for me the risk of unknown outcome of getting covid 19 infection was the main driver of having vaccinations.