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Have others had a problem with excessive sleepiness?

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I have fallen several times, and each time it is because I ignored the warning signs of muscle fatigue. I could feel my thighs and legs, weakening, and still I went ahead and did something which led me to fall when I should have stopped and taken a mastodon. we simply have to learn the early warning that my Uzi is giving us and correct for it

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I take as much as420 mg of Mestinon depending on my symptoms including fatigue

I find very useful .in addition I take VYVGART every 2 weeks

and prednisone 14 mg which I am trying to taper. Mestinon can and will

Cause diarrhea and flatus which can be controlled with Immodium.

VYVGART is my lifesaver.

B.Shameqqq

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This reply is to Tina and to Theresa’s. I find it very disturbing that in both of your cases your neurologist is not more aggressive with the best anon. Mestinon works. It can be taken as much as 12 times a day. They side effects being diarrhea. If you take more than 12 or even approaching 12 you may get a paradoxical reaction where your myasthenia gets worse but certainly you can increase your medicine on quite a bit. Taking 7 mg of prednisone is simply not enough in your case you need to increase your prednisone.. I hope this is helpful.

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I think James put it succinctly. Remission in myasthenia gravis is not an absolute term or definition. Suffice it to say “remission“ to most people means reasonable muscle strength, and no bulbar symptoms and a fairly “normal“ life for whatever age and activity level the patient is in.
regarding going off Mestinon and staying on steroids is some thing that I don’t understand-  the long-term effects of steroids is not good.  there are no bad long-term effects of mestinon. The idea is to reduce the steroids and not worry so much about mestinon. 

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I have been on VYVGART for nearly a year. As others have said it is a game changer. I have no side effects except for fatigue on the day of infusion.
VYVGART IS NOT ASSOCIATED WITH CANCER. Imuran and Cellcept can be.
The 50 to 70 day hiatus between treatment is not written in stone. If you are sliding back before your neurologist can write a script to give it more frequently.