[Ari Maayan]

Kenneth,

As you may know, excessive heat, excessive cold….and of course alcohol can trigger a myasthenic crisis.

Best wishes,

Ari

[Ari Maayan]

Hey Tim,

Great to read about your recovery. May you get better and better every day!!!

[Ari Maayan]

Good thinking Tim.  Glad to hear that you are on an upswing. Hang in there Buddy!!!!

[Ari Maayan]

Hi Tim,

I am sorry to hear about your difficulties with your MG. I hope that you will soon be on the upswing.  I have read that it is not a good idea for folks like us to take muscle relaxers. The way our autoimmune disease works is similar to what muscle relaxers do. Maybe someone has more complete or different information than what I just wrote. If so I welcome any information.  I have 2 doctoral degrees in the biological sciences but what I got out of all that education was the enlightenment that there was a hell of a lot that I didn’t know. And every day I seem to know less.

[Ari Maayan]

Thanks Craig,

Maybe the 2 bananas isn’t enough potassium because I take 240 mg a day of mestinon. I’ll try the Gatorade. That didn’t occur to me. Or I will take a daily supplement.

[Ari Maayan]

I suffer terribly from cramps in my calves and feet. I have to get up in the night and place my hands against the wall with my feet some distance from the wall so that I can stretch out the cramping muscles.  I eat 2 bananas a day but they don’t help. I take 4  X 60 mg a day of mestinon. My neurologist says that the cramping is because of the mestinon. But for me that is still preferable to taking an immunosuppressant or steroids. I also get monthly IV/IG.