[mary-s-browder]

Filled mine a month ago (60mg) tablets with no problem.

[mary-s-browder]

I have traveled internationaly with MG.  I was originally diagnosed with ocular and then it progressed to generalized.  I was on IVIG for a year during Covid lockdowns and now that we can travel again and I travel for work I am using SQIG.  I’ve carried as much as 3 doses with me plus all the supplies.  When on a cruise I let them know and they have a sharps container in the room for us.  If I’m in a hotel I carry a small sharps container that I purchase online.  I have a bag that looks like a diaper bag but it’s Vera Bradley so it’s adult looking.  It does hold three weeks workth of all the supplies.  I did clear travel plans with my neurologist.  Before I go thru TSA I let them know it’s medical supplies.  You can carry a carry on, a personal item PLUS  a medical bag as long as it fits under the seat or overhead bin.  I have a luggage tag on it identifying it as medical supplies.  TSA has never questioned it or even asked to open the bag and It has 300ml of fluid in six vials in it.  Plus needles and pump and other supplies.  I also carry a travel note from my doctor stating I must have it weekly and I also acrry the prescription that is up to date.  All of this plus my oral meds fit in this one bag.  My hsunabd I I also carry a special medical insurance that IF I ever get hospitalized internationally and am stable they will transport me back to the US to the hospital of my choice.  I make sure I don’t overdo it especially when out of the cuntry.  Take lots of breaks and makes sure I don’t miss any of my meds.  Hope this helps.

[mary-s-browder]

I started having symptoms Dec2017.  By April/May I was having severe double vision and on my second doctor to find an answer. I had to retire from a job I loved teaching a scrapbooking software for a large photo storage company,  who had purchased the company I helped start.  It was discouraging.  Dec 2018 and on my 5th doctor I received my diagnosis.   LRP4 Mg.  High dose Prednisone was started and Cellecpt.  Eventually IVIG and now SQIg.  Over the next few months and after an an exacerbation my doctor has me very stable and Feb 2020 I was able to be rehired by my previous job and have enjoyed working again.  It’s primarily at home and my SQIg makes it easy to travel on business trips.  I have a very supportive health care team and husband so I am bleassed and very grateful.

I’m starting to exercoise again, no remission though, but definietly under control on Hizentra, and Cellcept and very rarely Mestinon which my doctor lets nme regulate as I need it.

I can travel for both business and pleasure now, see my kids who live in other states and grandchildren. I was even able to hike a little in some national parks last summer.  At 62 and an MGer I felt a sense of accomplishment doing that.

[mary-s-browder]

I was negative for Achr and Musk. 5th doctor I saw (first four PCP, Ophthalmologist, Oculoplastic surgeon, Neuro ophthalmologist) all disagreed on whether I had it or not. The ophthalmologist and neuro-ophthalmologist said it was not) The Oculoplastic surgeon said even though those tests were negative he thought I had it. Finally, I did some research and found a neuromuscular specialist. She drew labs and found I was positive for LRP4. Labs took a couple of weeks to get back, but she said she was sure I had it at my initial visit.