Forum Replies Created

  • I’d like to be part of this.  My dad had MG for the last fifteen years of his life and his birthday is June 20.  It would be a cool way to honor the finest man I’ve ever known.

  • Mark Harrington

    Member
    February 10, 2023 at 8:29 pm in reply to: Vyvgart side effects

    I begin my third round of VYVGART next week. It has been a gem changer for me. I haven’t had any side effects. I do drink one glass of PURE cranberry juice 2X day. It is pure cranberry juice, not cranberry juice cocktail, or 100% Juice. It is bitter so I mix it with some sparkling water. Does it help? I don’t have any proof, but I haven’t had any UTIs. Good luck.

  • Mark Harrington

    Member
    December 1, 2022 at 9:26 pm in reply to: Is MG hereditary?

    At age 70, my Dad was diagnosed with MG. I was diagnosed at age 60. I was told MG “wasn’t hereditary , but ran in families.” I think I know what that means. As of now there isn’t an identified hereditary. Despite no medical training I feel someday there will be a conclusive connection with hereditary.

  • Mark Harrington

    Member
    July 26, 2023 at 2:40 pm in reply to: Dysarthria: How Does MG Affect Your Speech?

    Interesting to hear your comment about “s.”  My only speech difficulty is with “s.”  When I am nearing my next Vyvgart cycle, dysarthria becomes a pretty noticeable issue.  Most days it is after dinner, or thereabouts, that I have difficulties.  Best of luck.