Mark Harrington
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Mark Harrington
MemberMay 19, 2023 at 2:19 pm in reply to: Looking For 10 Individuals to Share Their MG Story in a Community Spotlight for Myasthenia Gravis Awareness Month (June)I’d like to be part of this. My dad had MG for the last fifteen years of his life and his birthday is June 20. It would be a cool way to honor the finest man I’ve ever known.
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I begin my third round of VYVGART next week. It has been a gem changer for me. I haven’t had any side effects. I do drink one glass of PURE cranberry juice 2X day. It is pure cranberry juice, not cranberry juice cocktail, or 100% Juice. It is bitter so I mix it with some sparkling water. Does it help? I don’t have any proof, but I haven’t had any UTIs. Good luck.
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At age 70, my Dad was diagnosed with MG. I was diagnosed at age 60. I was told MG “wasn’t hereditary , but ran in families.” I think I know what that means. As of now there isn’t an identified hereditary. Despite no medical training I feel someday there will be a conclusive connection with hereditary.
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Mark Harrington
MemberJuly 26, 2023 at 2:40 pm in reply to: Dysarthria: How Does MG Affect Your Speech?Interesting to hear your comment about “s.” My only speech difficulty is with “s.” When I am nearing my next Vyvgart cycle, dysarthria becomes a pretty noticeable issue. Most days it is after dinner, or thereabouts, that I have difficulties. Best of luck.