Joe Manley
Forum Replies Created
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Gary,
I’m gonna start this drug, Vyvgart, later this month. My question, will Medicare pay 80% of the cost as I understand this relatively new drug cost $6,500+ and I’m retired living on a fixed income. Any information, greatly appreciated!
Thanks,
Joe -
Been prescribed Vyvgart having been diagnosed late last year, 2022, but it’s a process and cost is extreme, like $6,500 or more. Was on regular daily treatment of  50 mg of prednisone and 180 mg  of Pyridostigmine. Understand that this drug is FDA approved 2+ years ago and wondering how others are dealing with its effectiveness and cost. I’m a proud VET but saving my money at 73, retired, dealing with diabetes and PMR too. I love Pickleball for exercise but come to play already exhausted so need breaks and my game has a noticeable reduction in my ability, just don’t have the endurance or energy anymore. Joe in Maryland!
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I’m 73, living in central Maryland, having been diagnosed with MG for about 2 months. Think I’ve had symptoms for last 6 months or longer. I’m taking a daily heavy dose of prednisone and pyridostigmine bromide which has helped my condition, not seeing double vision now but having side effects, like diarrhea, leg cramps and rhinitis. I’ve been playing Pickleball since retirement in 2015, almost daily,  losing 60+ lbs. over that time as I’ve become addicted to this fast growing sport. Now my extremities have me slower, legs feeling mushy and endurance a big problem. My energy level becomes depleted quickly and just can’t do what I use to do, giving me a high level of frustration and depression. I’m now on depression pills for it. This disease has already affected my eyes, face, throat, hands and legs and my mental well being. I take more naps now and will see my neurologist next week, after 8 weeks wait. I wanted to see her sooner but doctor didn’t have any openings. I’m dealing with type 2 diabetes and PMR too,  so I’ve got my medical issues as you all do and guess I should be grateful for what I still have, in that I can still play, my favorite sport, Pickleball! Wish you all the very best in your MG journey!!!