Forum Replies Created

  • Mary

    Member
    September 22, 2022 at 10:18 pm in reply to: Hey all!

    For the eyelid droop, I had my eye doctor prescribe Upneeq which gives me about 6 hours of open eyes. They need to call into RVL pharmacy and have it shipped. Insurance will not cover it because it is considered cosmetic. My blurred vision and double vision goes away when my eye lids are lifted above my pupils, which happens with the eye drops.

    I don’t understand how a positive blood test means no MG. I have negative blood test and the neurologist says that it is probably zero-negative MG. I agree with all the others to find a new MD that specializes in MG