Kevin J Funaro
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My neurologists questions my symptoms since it is mostly in leg weakness and tingling. Pain always when I get up because legs are so weak.
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This is a 2 stage question for me. It took a year because my doctor took blood for my double double vision and I am hard draw. The lab said they didn’t have enough blood to test. We didn’t resubmit at the time because my dr had doubts that is what the cause was. The double vision went away after a week. A year later it came back with a vengance and I tested positive for ACHR MODULATING and MYASTHENIA GRAVIS EVAL WITH MUSK REFLEX were both positive. Now I am under care of the neurologist and double vision is gone still some blurriness in vision. But it seems voice and leg strength is affected greatly. Stairs and getting up also numbness that does not go away. Does any one else have this with the legs?
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Received my Pfizer booster yesterday at the neurologists office and so far just a little soarness in arm. But I am very tired. After reading the other posts I hope it doesn’t trigger something worse. I can’t remember the what the time frame was with the onset of MG symptoms and the first vaccinations to know that had anything to do with it. But I am going to check on my records!
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Also in addition to bananas that Tums seem to help. I saw this on the internet. The neurologist also has me taking calcium and Vitamin D in the initial appointment.
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Fortunately my acetylcholine receptor binding antibody tests came back positive. The neurologist gave me first mestinon followed by low dose prednisone working up to 40 mg. Right now it 20mg. Muscles are very sore in legs but the eyes are better. Michelle from your experience is this normal in the beginning?
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I woke up in the middle of the night with leg cramps. Haven’t discussed with the neurologist, but ate a banana and there were no more leg cramps. Also had them a few weeks age when I first started. I Am going to be proactive and eat a banana a day.
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I thought I would test negative for it. But actually relieved I had answer for the tiredness of my body.
When you are a former smoker with stroke history it makes one a little anxious about what else it could be.
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Thank you for the info. I still have a hard time accepting it as the symptoms are not cut and dried. I wonder if the prednisone sometimes is causing the leg issues. Arm strength is good but cramping in hands and legs is a daily occurence and that might be a side effect of the medicines.