[Aaron]

I definitely have the shortness of breath and chest tightness. My neurologist referred me to a pulmonologist and they were able to get me approved for a non invasive ventilator. It’s a huge help. I mostly just wear it at night, but there have been a few times I’ve had to wear it during the day and it’s kept me from going to the hospital. I’ve also had a couple surgical procedures and the vent was a necessity after anesthesia.

[Aaron]

Thanks for the reply. I keep a small fan next to me too! I also have muscle weakness, and my muscles get worn out so quickly doing the simplest things. Sometimes I get really bad body aches. It feels similar to what you might feel with the flu, but no other flu like symptoms.