Forum Replies Created

  • Karyn Brett

    Member
    March 26, 2023 at 5:59 pm in reply to: Actual Results using Vyvgart

    Hello everyone. Has anyone had to stop Vyvgart and go back to IVIG ? I’m curious how long you have to wait in between. I did not have a positive experience with Vyvgart. Allergic reaction and full-body tingling with pretty bad muscle pain. Muscle weakness is worse than before I started. I had a total of 4 infusions -1 cycle.

  • Karyn Brett

    Member
    March 26, 2023 at 7:30 pm in reply to: Not a candidate for Vyvgart

    I am seronegative. My doctor had to include a diagnosis of CIDP or else my IVIG would not have been approved either. I’m sure some of us seronegative patients will tell you that you need to find a doctor that is “creative” if you understand what I’m trying to say. Most doctors know how to play the insurance game. You may want to find another. Be well

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