[isy]

Reply To: First Signs of MG
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<div class=”wp-editor-tabs”>My first sign of MG was having some breathing issues which weren’t too bad at first and I started losing weight.  The breathing go worse as time went by & then the swallowing and speech slurring started.</div>
<div>I first thought it was allergies since it was June when it started.  My primary sent me to an ear, and throat specialist who was baffled.  He sent me for speech therapy which didn’t work.  I asked for a second opinion and that guy said it was paradoxical.</div>
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<div>He had no clue either.  When they finally did a swallow test, they referred me to a neurologist who thought it was either ALS or MG.</div>
<div>After waiting a month for the blood test, I got the good news that it was MG & not ALS.</div>
<div>I have been very lucky to have a great doctor and great results from the Rituxan treatments.</div>
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[isy]

The worst thing for me before I was diagnosed with MG was that the ER docs thought I was having anxiety attacks.  Which was the furthest thing from the truth.  I was anxious because I was having so much trouble trying to breathe.

It was 9 months for me having these breathing issues before I saw a neurologist and was diagnosed with musk positive MG.

I was very blessed to have a wonderful neurologist who had never had a patient with this type of MG.  He had to check with other doctors before treating me.  I had 4 sessions of  plasmapheresis before being treated with Rituxan.

That has been the best treatment for me & my doctor used the same treatment for his second patient with the same type as me.

Medicare paid for all the Rituxan infusions.  I only had to pay for the use of the oncology room.

 

[isy]

I have been in remission for about 4 years. I have Musk Positive MG and have had infusions of Rituxan when my numbers go up. So far, so good.
I am having my next blood test next month & my great neurologist stays right on top of the results. If there is any increase in the numbers, we do a repeat test & if necessary, start the infusions.

[isy]

I was very happy to have been diagnosed with Myasthenia Gravis because I had initially been thought to have ALS. Therefore the MG diagnosis was much better.
I also had a brother who had Myasthenia Gravis, so we could exchange our thoughts