Forum Replies Created

  • Gilbert Brown

    Member
    October 30, 2021 at 3:12 pm in reply to: Experience With CellCept

    I took Cellcept for 5 years and I have sever Emphysema and since my immune system is compromised I get lung infects often about two months I quit taken Cellcept because I thought i was in remission and had no problems for 5 months and MG came back worse my whole body hurt . went back on the Prednisone and cellcept again and sitll have two weeks of prednisone to take hope all works out and you guys are great and i wish all of you the best .

  • Gilbert Brown

    Member
    September 9, 2021 at 6:40 pm in reply to: COVID-19 Vaccine Booster Shot and Myasthenia Gravis

    Hello Gil  here and I have had the 3rd shot which is really not as booster , it is just a vaccine shot like the other two. I have had mg for 5 years and was taking Cellcept and the Mestin did not help me at all . I thought I might be in Remission and about the time of the 2 vaccine I quit taking Cellcept and was fine for 5 months and now my upper legs hurt when i walk and shoulders hurt at times . When I first was diagnosed  with MG I had the normal problems like droop eye lids could not hold my head up and Swallowing was hard . My primary doc.gave me a referral to a  neurologist and it has been 2 or 3 moths and have not heard from the Doctor . Just wondering it MG can come back with different symptoms . Thanks for listing to all this and it is complicated . Thanks Gil