Greg Goff
Forum Replies Created
-
I was diagnosed with MG in April 2021. I started having symptoms In March 2021. I had Covid in February in between first and second Pfizer shot. Not sure if there is any correlation. Mine started with double vision and droopy eyes. I do have dry eye conditions. Went to three different Opthalmologists who wanted to treat dry eye problem. None talked about MG. I started slurring my words in April 2021 and made appointment with my Primary Care doctor who thought I may have had a mini stroke. An MRI that evening revealed no stroke. My doctor ordered blood test and as a result was diagnosed with MG. CT scan was done to rule out Thymus gland.
I was referred to Neurologist and started taking Pyridostigmine(3 each 60 MGS tables daily) prior to appointment. Double vision/droopy eyes went away after a few days. Slurring was still a problem. Met with Neurologist in June 2021. Pyridostigmine was increased to(4 each 60 MGS) per day and I started taking Prednisone(2 each 10 MGS daily). Prednisone was gradually increased to (6 each 10 MGS )daily over 5 months . Symptoms went away and Prednisone was gradually reduced to (10 MGS ) per day and Pyridostigmine was reduced to (3 each 60 MGS) day. These are my current doses with an occasional slur otherwise symptom free.
I was referred to a Neurologist at University of Washington for second opinion. They were happy with my current treatment. I was concerned about the progression of MG and other meds available for treatment. They do not believe this will progress any further and other treatments are for more severe cases. I guess I should be happy since there people with severe MG symptoms.
Overall my Primary Care doctor identified this at an early stage and I was able to interact with my Neurologist via emails to adjust my meds without having a face to face appointment. This really helped me. Hopefully I will have this under control. Only time will tell.
-
After reading comments on travel I am concerned about getting the booster shot. I got my first shot on February 1st. I was diagnosed with Covid on February 19th and could not get second shot until I was symptom free. My second shot was on March 9th. I was experiencing double vision the end of March which was later diagnosed with Generalized MG. My Neurologist believed the Covid triggered my MG. My family believes it was from the shot. I want to get booster but do have some concerns.
-
Moving on from watery eyes. I want to share initial problem that led to MG. Several years ago I had both droopy eyes tucked by an Optomologist. Febuuary 1,2021 I had my first Pfizer Covid shot. Before my second shot I was diagnosed with Covid 19. I believe grandson had a mild case. I had to delay second shot until I was symptom free. Second was on March 9,2021. In March my left eye started droopy again. Went to optomologist and was diagmosed with a dry eye condition causing droopy eyes and there was no surgical relief. In April I started slurring and went to my Primary care doctor who thought I may have had a stroke. This was ruled out with an MRI and futher test were done confirming I had MG and was referred to a Neurologist. I questioned my Neurologist on probable cause from shot or Covid. He suspects the possible result of having Covid and not the shot. I just wanted to put this out there for comments since I am new here.
-
Where you able to cut back the Prednisone after 4 months? I am increasing to 40 mg next week.
-
Dianagnosed with MG a few months back. Working on getting symptoms stabilized with Pryridostigmine(4 day) and Prednisone(3 day/going to 4). Still have doulble vision,droopy left eye, and lisping issues. I found that when I get stressed,tired. and overheated I experience severe watery eye conditions at night on occasions. Still learning about MG and myself.