Gaylee lacorte
Forum Replies Created
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I had all the symptoms you mention I have all of them and definitely have mg. Ended up in hospital 16 days with mg crisis I would def find another neurologist needed plasma aphersis helped for 1 yr. And be careful wat meds you’re on esp antibiotics can make mg worse happened to me!
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What is name of the script the pharamist said to help with mestione?
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I have a history of colon and thymona cancer st@ge 3 had radation in 2008 never had had any symptoms of mg. Until 2021 I was told by 2 neruo not to to get those infusion because of my history. So just be careful sorry I didn’t understand why
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I had my thymona removed due to cancerous  in 2008 I only had the antibodies  never had any symptoms  but then in 2022 I slipped out of bed. And couldn’t yell for help . I didn’t understand wat was going on ended in hosp  had a mg crisis. Had 10 treatments of plasma aphersis  was good for 1 yr!  Had another plasma aphersis didn’t help now I’m having IVIG  feel somewhat better at least now I can dress myself -talk eat  now . But still have problems with voice I slur my words on and off
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I had 2 neruo drs told me not to get it. I have a history of cancer in 2008  and said  Vvgart can be cancer. I do not know how true that is
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I was told I can not have that infusion side effects  of it ma cause cancer. Since I have a history of cancers I will not be able to get it 2 neruo told me that!
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I read side effects. Can be cancer since I have history I can’t have it
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I had my thymona removed due to cancer stage 3 in 2008 was diagnosed with the antibodies I never had a symptom until 2021 I slipped out of bed onto the floor and was paralyzed couldn’t move or yell for help it was a mgcrisis had plasma aphersis 10 – helped for 1 yr It hit me like a ton of bricks I thought it was COVID! So be careful
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I agree find a new muscular neruo
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I’m on 3 times a day but you’re saying by taking more it Will help with diarrhea
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Thanks I will go to Walmart and get the gummies
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I was diagnosed in 2022 I slipped out of bed and was paralyzed and couldn’t yell for help! Thank God my daughter found me I was diagnosed in 2008 had the antibodies but Never had a symptom until 2022 I had thymona removed was cancerous . So when this happen I didn’t know wat was happening to me. I had 10 treatments of plasma aphersis it help but took months to be able to shower- feed myself or even talk without slurring.I had double vision while in hospital 16 days. And once needed to wear an eye patch. I did have breathing problems 1 yr later but now finding out I had fluid around my heart so don’t no if that was the mg. I’m doing ok now I’m on prednisone which now I have a fractured vertebrate probably from steroids. Trying to get now. Need to take insulin also. I never had sugar problems hopefully I can stop steroids . With this mg no one really knows what’s next!
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My 2 neruo drs told meNot to get the infusions  I have a history of 2 cancers and they bring down immune system ??? Plus it’s too new for me to see all side effects
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I was driving then all of a sudden my one eye was giving me a problem needed the patch  but mestion helped me and prednisone