Forum Replies Created

  • Deb Hansen

    Member
    December 3, 2021 at 8:14 pm in reply to: Ocular MG – Hacks, tricks, tape, etc?

    I had severe ptosis of my right eye lid (drooping so much I couldn’t see out of it) that I had surgery that resolved that problem.  For the vision I had been on Mestinon for awhile which had gotten me to about 75% of the time I had clear vision (but I was taking quite a bit per my neurologist).  I had a pretty bad ‘relapse’ over the summer when my vision was only clear about 25% of the time.  My neurologist put me on Prednisone, tapering off within 6 weeks and my vision is amazing!!!

  • Deb Hansen

    Member
    August 27, 2021 at 9:06 pm in reply to: The Vaccine: Experience & Side Effects

    I have ocular MG.  I am one of the few who, 6 weeks after the second shot, experienced my vision deteriorate so bad I started on  Prednisone.  8 weeks later I’m almost completely weaned off the prednisone and my vision had greatly improved.  So I’m of getting the 3rd/booster.  Am talking with my neurologist about my options.