[Alice Ulrich]

He has exhausted all treatments for his Myastenia Gravis including (celcept, Imuran, Mestinon,    Plasmapherisis, IViG, and most recently Chemo).   Nothing helped or he had reactions .    That’s how he got it approved.

he’s currently on 60 mg of Prednisone. He is on his 4th dose of Vyvgart with no change so far.

Hope you get relief.

[Alice Ulrich]

Thank you for the response

he started having symptoms in 2009 but wasn’t diagnosed until 2017.  He has tried all that you have mentioned.  Some he had major reactions.   He did Plasmapherisis with no change.   He did IViG with some improvement but he started having major reactions so the doctor stopped.   After that he tried Chemo but had to stop because of high liver functions.  He is on he’s 4th dose of Vyvgart with no change.

we actually went to Mayo a few years ago and that doctor gave our doctor high marks do we decided to stay.

just wondered if anyone out there 1) caught the disease late in the process 2) tried all medicines. 3) seronegative and trying Vyvgart

Thanks for any input anyone can share

 

 

[Alice Ulrich]

My husband is seronegative and is on Vyvgart. He is on the 4th infusion with no change.   I hope if you get approved for it that it works on you.