Seronegative Diagnosis? Please read.

[Romie]

I have a new diagnosis 10/27/23 of Seronegative MG. Definitive dx by single fiber EMG. I am interested. Thanks Romie

[TheresaG]

Sorry thought your post indicated you could not get a dx.

[Anne Aloi]

I am seronegative. Diagnosed 4 years ago. Have had a thymectomy and am on imuran. Would be glad to participate

[Denise Dean]

<div>I’m seronegative and definitely interested.
</div>

Denise

[Bobbi]

Seronegative , definitely interested . Diagnosed , for 6 years , then doctor said she was mistaken . After 3 different neurologists finally being treated again .

[Cin]

I am sero negative and getting treatment was difficult but thanks to my daughter who works at a Infusion pharmacy and knows how to navigate the insurance I got Ivig treatments. They helped but i would always have the crash and burn.

Now i am on Scig treatments with Hizentra and the difference was great.

I still have bad periods during tge summer with the heat but the rest of the year i feel almost normal. But it us hard because I don’t look sick but people who don’t know this disease look at you like you are making it up. I would love for them to spend a day in my body.

[dogmom]

Is there still a possibility of having the SNMG support group? I’m interested but noticed this discussion is 2 years old.