MG Ask Me Anything
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Let’s Talk Identity & Coping with MG
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Let’s Talk Identity & Coping with MG
Q: How do you maintain your sense of self during the ongoing cycle of MG flares?
A: I talk to myself a lot…in a grounding, intentional way. I’m constantly reminding myself of who I am, even on my worst flare days. MG doesn’t get to redefine you. I hold onto the parts of me that exist beyond my symptoms: my values, my passions, and the life I’m still building.
Q: How do I find good balance in life living with MG? The ups and downs are so hard.
A: Balance came when I started honoring my body and my comfort above all else. With MG, the ups and downs don’t go away, but learning to move with them instead of fighting them makes a big difference. I’ve learned to adjust with grace.
💬Let’s Talk About It💬
1. How has living with MG changed the way you view yourself?
2. How have you worked to rebuild or redefine your identity?
3. What strategies have helped you cope?
✨Let me know your thoughts in the replies✨
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4 Replies
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I view myself no different than what I did before other than I have an extra carry-on bag for life’s travels.
My redefining was relearning my body’s limitations and approaching every moment and every challenge with a smile! I am always thankful for being able to wake up on this side of the dirt for another day with loved ones!
My strategy is simple; trusting in our Lord and Savior! After that, leaning on family and friends. All these things keep me smiling especially when I know it could be worse!
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You mentioned that redefining moment of relearning your limitations, that’s such a common practice for those of us with chronic illness. Appreciate you sharing 💗 @JQuest
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I had actually stopped working due to other health reasons before being diagnosed with MG. It turned out that I was already exhibiting symptoms of MG. So I had had semi-adjusted to not working, had new grandchildren to enjoy and just moved my elderly mom here from out of state by the time I was diagnosed so I didn’t really see myself differently . That is until 3 years ago, when I was hospitalized with my first crisis, even then I didn’t really myself differently. But after 3 more in 6 months and not being able to go anywhere on my own because I wasn’t certain if I could back, not being to care for my mom or grandkids- I started seeing myself as a problem to my family instead of a help. It took a lot of prayer and self reflection to get past that, especially since it was another year before there was any stability in my treatment effect. I eventually was able to help my mom again and able to be with her . My faith is the thing that has really gotten me through. Usually I pray, put on worship music and sit quietly or sometimes sing out how I’m feeling. The hardest thing was being able to ask for and accept help without feeling like a problem or a burden. I still try to do as much for myself, like using Uber or that so my family doesn’t feel that they are always having to go with me.
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I hear you. Belief systems play such a huge role in helping us cope. I’m glad to hear you’ve worked through the challenges and are feeling more independent @Denise
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