| Short Bio |
I am a retired school superintendent. I was recently diagnosed with MG with the rare LRP4 antibody. I have suffered with symptoms for a number of years before finally identifying the etiology as MG disease. I believe my mother suffered from the same symptoms but was never diagnosed. I was unable to tolerate Pyridostigmine and have been on Prednisone for three months with limited relief. My doctor’s plan at this time is to continue with Prednisone, while beginning IVIg. I would like to connect with others who have the LRP4 antibody and learn of their treatments.
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| How long have you or the person that you are caring for had MG? |
5 plus years of symptoms but 3 months of confirmed diagnosis
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