• oh, Douglas..I’m so sorry

    I hope to be as strong and appreciative of music around me when I can’t sing anymore…

    thank you for sharing. I want to be able to accept and not be so fearful

    michele

     

  • oh, my gosh..this scares me the most! well, that and dying..and blindness…well, everything about mg!

    I AM a singer…and I’m trying to sing as much as I can because I don’t know when I won’t be able to anymore.

    so, prednisone helps, Mary Ann?

    I have less breath control. I can’t sing as long on a phrase….sometimes it’s not as clear…small…[Read more]

  • I Just don’t know what to do with this.

    I’ve had 2 vaccines and 2 boosters.

    It has been hard enough without MG to be in this covid world.

    I have limited social activities to the max…before I knew I had mg because I am helping my 95 year old mother..and need to protect her.

    I feel I dropped out of life even more now that I have MG. I have…[Read more]

  • Michele Ayers posted a new activity comment 2 weeks, 5 days ago

    Thank YOU Jodi!. I am sorry to hear you had a bad day. I know it’s been a long time since I joined. I kind of went into denial. Right now my left eye is completely closed and it’s only after 5pm.
    Thank you for asking abou.t the chest scan. It was negative so that was a comforting surprise.
    The mestinon and prednisone were overprescribed and I…[Read more]

  • Thank you Michelle! I am so glad you have this forum/site and I am happy to hear you are in remission. I ( she/her) was recently diagnosed and look forward to gaining from your knowledge and personal experiences. My first signs have been ocular and I am on prednisone and mestinon. Do you know anyone who has tried the newest fda approved…[Read more]

  • Michele Ayers posted a new activity comment 5 months ago

    Good morning! I am looking forward to learning and sharing on this site.
    I was recently diagnosed. I have my chest ct in a few hours. I’m wondering what percentage of people have the thymectomy with or without thymoma. And how do you feel after a week of recovery and how much do you worry about being immune suppressed? A Lot of questions…just ner…[Read more]

  • Michele Ayers became a registered member 5 months ago

    • Good morning! I am looking forward to learning and sharing on this site.
      I was recently diagnosed. I have my chest ct in a few hours. I’m wondering what percentage of people have the thymectomy with or without thymoma. And how do you feel after a week of recovery and how much do you worry about being immune suppressed? A Lot of questions…just ner…[Read more]

    • Hello, Michele! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

      I am so sorry I am just…[Read more]

      • Thank YOU Jodi!. I am sorry to hear you had a bad day. I know it’s been a long time since I joined. I kind of went into denial. Right now my left eye is completely closed and it’s only after 5pm.
        Thank you for asking abou.t the chest scan. It was negative so that was a comforting surprise.
        The mestinon and prednisone were overprescribed and I…[Read more]

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