Mark Shear

I took IVIG for many months without any side effects at all. I can not say if or how much the IVIG helped. The first series of IVIG seemed to allow my prednisone dose to be reduced over time but in February my symptoms got worse. So my doctor changed my infusion to Vyvgart. Before they could get that going, I had to have 5 rounds of…[Read more]

When I went into a crisis in February my doctor increased the prednisone to 30mg and I got IVIG as well. Prior to the crisis I had finally gotten down to 10 mg of prednisone after a year of my doctor slowly reducing my prednisone dosage down from 60mg per day.  I think they are all cautious about reducing prednisone too quickly as that too can…[Read more]

I am going to try Rick’s great advice for techniques to use.  Before the MG, I never understood fatigue and I am still trying to wrap my head around it. I have the same symptoms the others who have commented said such as doing better in the morning, can only exert so much at a time and the randomness of fatigue some times.

I feel like I am be…[Read more]

I was weaning down from 60 mg of prednisone and was down to 10mg every other day. In my case, I had a reoccurrence which I can not point to any trigger including the lower prednisone. This time, my symptoms have been worse. First time was just double vision, now includes neck weakness and fatigue. I am back up to 40mg of prednisone and just…[Read more]

Thank you Theresa. I am hopeful.  Btw, I am seropositive.

I start my first infusion next week. It was interesting to hear two different reactions to the infusions so far.  Keeping my fingers crossed for me and everyone leaning on vyvgart.