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Dave Hall replied to the topic Myasthenia Gravis’ Impact on Marriage/Relationships in the forum Relationships & Social Life with Myasthenia Gravis 6 months ago
Since I cannot do a lot of the physical chores I used to do, I now do the vacuuming, dishes, laundry, and any other house chore I can do. My wife takes care of most of the outside chores. Not my retirement dream, but we are still .
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Dave Hall replied to the topic Misdiagnosis Before MG in the forum Healthcare and Myasthenia Gravis 9 months ago
I was very lucky in that I got diagnosed very quickly. One Saturday morning I was driving with a friend in my truck, my eyelids kept falling. I wasn’t falling asleep since we were conversing. Monday, I scheduled an appointment with my primary care doctor. Later that week, at my appointment, I explained that several months earlier I took my wife…[Read more]
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Dave Hall replied to the topic Plasma Donations in the forum Healthcare and Myasthenia Gravis 10 months, 2 weeks ago
Years ago I used to donate blood quite often. After all, I had the “best” blood, A+. The blood donation got to be a hassle, too much traffic, too many delays, so I just quit. Now that I am retired and cannot do near as much as I used to, I thought plasma donation would be a good thing. Before I could even bring the MG into the discuss…[Read more]
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Dave Hall replied to the topic First Signs of MG in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 10 months, 4 weeks ago
Several years before I retired, I bought a small farm outside of Houston Texas. I soon had sheep, Nubian dairy goats, egg laying ducks, a couple donkeys, a pair of horses. My dream was to get licensed so I could sell my goat milk cheese at a local farmers market, along with my duck eggs. To get the license I needed a micro dairy. My wife fo…[Read more]
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Dave Hall replied to the topic Immunosuppressants and Going Out in Public With COVID-19 in the forum Coronavirus (COVID-19) and Myasthenia Gravis 11 months, 2 weeks ago
I am retired, live on my farm, out in the country. I no longer go to local Farmers Markets to sell my produce, and never thought I would rely on Amazon Prime so much. But all in all, I feel good about what I am doing. I still go to the therapy pool five mornings every week, early in the morning to avoid people. I miss going to the movies wit…[Read more]
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Dave Hall replied to the topic Weight Gain and Loss in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 1 month ago
When I retired I weighed 215-220 lbs. Two years later I was diagnosed with MG. Now, three years with MG, I weigh 156. I am careful with what I eat and how much I eat. I do walk in a therapy pool for an hour three times a week. Then I take my “off road” walker and walk a mile in the park twice a week. I don’t know if the MG has caused my w…[Read more]
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Dave Hall replied to the topic How Do You Remain Physically Active? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 2 months ago
Before I retired, before I was diagnosed with MG, I bought a small farm (30 acres) outside of Houston Texas. Since my diagnosis, I no longer sell products at a local farmers market. I don’t do near the farm chores I used to do. However, I do a lot more home chores. I vacuum, do the laundry, clean the bathrooms, take care of washing the dishes…[Read more]
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Dave Hall replied to the topic Positive Experiences With Health Care Providers in the forum Healthcare and Myasthenia Gravis 1 year, 3 months ago
I was very fortunate in that I got my MG diagnosis very quickly. My farm is outside of Houston, Texas. Consequently, all my doctors are in small, country towns. Not the usual place you would expect to find exceptional medical care. After I retired, I decided to get licensed so I could sell my goat milk cheeses at a farmers market. My wife…[Read more]
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Dave Hall replied to the topic Taking Care of Pets in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 4 months ago
While in my fifties, I bought a small farm outside of Houston Texas, for the benefit of my wife. I have always had dogs, with my Vizsla I did obedience, flyball, and hunt tests. My wife was into herding with her border collie. Now, she is very competitive in herding, trains a lot of other people’s dogs, puts on trials, and right now has four d…[Read more]
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Dave Hall replied to the topic Weight Loss and MG in the forum Nutrition, Supplements, and Exercise 1 year, 4 months ago
Before I retired I weighed 215 to 220 pounds and was only 5’ 8”. I was in sales so I was taking customers out for a nice lunch several days a week. Plus I was taking my wife out to eat several nights a week and weekend breakfasts. A year after I retired I was diagnosed with MG. I was very lucky in that my PCP had worked with two patient…[Read more]
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Dave Hall replied to the topic Hobbies You Struggle to Adapt to With Myasthenia Gravis in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 6 months ago
A few years prior to retirement I bought a small, rural farm. My retirement dream was to escalate my agricultural business, get licensed so I could sell my goat milk cheese at my favorite farmers market. MG made that dream just that, a dream, not to be realized. I no longer milk my Nubian dairy goats, I feel it is too dangerous since I have be…[Read more]
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Dave Hall replied to the topic How to Stop Feeling Like a Burden in the forum Mental Health, Self-Care, and Support 1 year, 6 months ago
Before I retired I bought a small country farm. That was a natural since I had always been outdoorsy. I looked forward to keep milking my Nubian dairy goats, making cheese, and selling at a local farmers market along with my duck eggs. On the way to pick up a micro dairy, so I could licensed, my eye lids kept dropping. Made an appointment wit…[Read more]
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Dave Hall replied to the topic Taking Care of Pets in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 7 months ago
I have always had dogs. For years I was very active competing in agility and obedience with my Vizslas. Now I have a farm, lots of sheep, so we have a lot of border collies and a couple of Australian Shepherds. I can no longer compete but my wife does. For me, it is a good day when one of the dogs joins me on the couch for petting. I can not…[Read more]
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Dave Hall replied to the topic Myasthenia Gravis Diagnosis Timeline in the forum Healthcare and Myasthenia Gravis 1 year, 7 months ago
I was very lucky, I was diagnosed very quickly. I noticed I had difficulty chewing a nice steak one night. A couple of months later I had a problem chewing fried chicken. Then the big reveal. I had a friend in my truck, we were going to pick up a micro dairy and my eyelids kept dropping. I wasn’t falling asleep since I was talking. The n…[Read more]
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Dave Hall replied to the topic Experience With CellCept in the forum Healthcare and Myasthenia Gravis 1 year, 7 months ago
I have been on Cellcept for six years. As far as I know, I have had no bad effects. I see my neurologist twice a year and that is when I have my blood tested. I had some bad side effects when I was on prednisone and was glad to get off it. I don’t think I have ever been in “remission “ as I am always weak, sometimes worse than others, b…[Read more]
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Dave Hall replied to the topic Taking Care of Pets in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 8 months ago
I would not choose to live without my pets. When I was younger (pre MG) I did obedience, fly ball, agility, and hunt tests with my dogs. I no longer can do the dog sports that I loved. But now that I am old and retired, I own a small farm and my wife is big on Sheep Dog Trials. She will be gone for a weekend or nearly a week while com…[Read more]
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Dave Hall replied to the topic Cooling Devices for the Heat in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 9 months ago
I have a small farm outside of Houston, Texas. So yes, I have a lot of heat and humidity. I have sold my duck eggs at a farmers market in Bryan, Texas. Most of the time the heat is not an issue since the market opens at 8:00 AM and we are done at noon. To make sure I stay cool, I have made a small cooling box. Just a small styrofoam ice…[Read more]
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Dave Hall replied to the topic Using Disabled Parking, Bathrooms, Wheelchairs, Etc. With an Invisible Illness in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 9 months ago
I have toyed with the idea of getting a handicap parking permit but so far, have refused. I know I need the extra exercise that I must get by not having the permit.
Sometime ago, at my local grocery store, I watched a young college couple approach a car that was in a handicap space. They both appeared to be physically fit. As they got close I…[Read more] -
Dave Hall replied to the topic Summer Heat & MG in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 10 months ago
I was diagnosed with MG shortly after I retired, six years ago. My retirement plan was to increase my agricultural business on my farm. My farm is outside of Houston, Texas so I have plenty of heat and lots of humidity. One Saturday morning while I was at the Bryan, Texas farmers market selling my duck eggs, I finally had a bad reaction to the…[Read more]
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Dave Hall replied to the topic Watery Eyes From Pyridostigmine? in the forum Healthcare and Myasthenia Gravis 1 year, 10 months ago
I take Pyridostigmine and I do have watery eyes, on occasion. When it happens, I just use a clean towel to dry my eyes. Usually, that is all I need to do since my watery eyes is not a full time condition.
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