Gary Lidiak

What was the specific reason you were given that you were not a candidate? I am using it and it is a miracle drug for me. However, that’s why they call MG the “Snowflake Disease”. You never know.

First off, offended is a very strong word; I never find myself getting offended. MG is a very rare and unknown disease. How do we expect our friends, family, and others to understand what we are going through? It is not a one size fits all disease. I do like to hear ideas that could help symptoms I have. For example, I was told pineapple juice…[Read more]

Wayne,
You can contact the Vyvgart team yourself and have them contact your neuro team to get things started. I was the first person in Houston to receive the Vyvgart treatments because we pushed our Neuro team to work with Vyvgart. Now I am down the road with the new treatments and living differently that I have in years. Not a cure, but…[Read more]

John,

Over time Vyvgart should replace many of your meds if it works for you properly. You must start out the first series with 4 infusions over 4 weeks. In other words, one infusion per week for four weeks. The infusion itself takes about one hour, then they monitor you for 1 hour. Not bad at all compared to IVIG and others. You MUST take…[Read more]

That is great. I kinda felt “refreshed” is the best way to describe it for me. I hope you continue to see improvements.

Yes, it was 13 baselines.

BY THE WAY…I have had NO side effects at all on Vyvgart.

The day after I noticed some improvement but the second day after much more. Each treatment has not improved allot, but I am able to do things I couldn’t before. Walking with no walker or cane, no slurred speech, climbing stairs slowly but able. I am very happy. I have a couple of eye issues but overall, I am doing better. May take several…[Read more]

I noticed improvement the second day and significant improvement the third. Ongoing it has leveled off. I am better than I was on anything else but still have room for improvement.

We have a blog that chronicles the process.

http://www.i-am-blessed.com

Yes I am