• Hi.  I was on Imuran for over 30 years and was warned about the side effects.  It was great to keep my Mg under control but the later years I started getting melanomas and scc’s.  I still need to stay out of the sun as my drug therapy now and being on prednisone my immune system is depleted.  My skin now is very sensitive- especially my legs.…[Read more]

  • Hi.  I have had MG for 32 years and mainly under control.  I have osteoarthritis in my hands and back.  Eighteen months ago severed my right quadricep and had emergency surgery to reattach it.  It has been a long road back to learn to walk again without assistance with a stick.   i am not able to walk too far without stopping as my back hurts and…[Read more]

  • Leanne posted a new activity comment 8 months, 3 weeks ago

    Thank you. It has been a journey for me and continuing to be. I am lucky that I have a supportive network – especially my husband. Unfortunately being on a few high risk drugs over the years has caused other problems. I have constant back pain now but manage it with stretching and gym at the physio. I do miss my golf though and playing with…[Read more]

  • Leanne became a registered member 8 months, 3 weeks ago

    • Hello, Leanne! That is incredible you are still working! You have had quite the journey. I admire your strength being newly diagnosed. We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space…[Read more]

      • Thank you. It has been a journey for me and continuing to be. I am lucky that I have a supportive network – especially my husband. Unfortunately being on a few high risk drugs over the years has caused other problems. I have constant back pain now but manage it with stretching and gym at the physio. I do miss my golf though and playing with…[Read more]

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