kut
Profile
Name | Donna |
Last Name | Kobylakiewicz |
Nickname | Kut |
Short Bio | I was diagnosed in December 2023 but had been going back-and-forth to doctors for five years previous to that January I have to go in for slight crisis. I was in for seven days receiving IVIG. IN JUNE, I HAD A COMPLETE KNEE REPLACEMENT WHICH WE COULD NO LONGER PUT A WHILE DID GET THROUGH THE SURGERY RECEIVING IVIG TWO DAYS FIVE HOURS EACH BEFORE THE SURGERY SINCE THEN I’M HAVING A HARD TIME WITH THE FATIGUE AND I’VE VYVGART , COMPLETING MY FIFTH CYCLE. I’M NOT SURE IF THIS IS HELPING ME BUT I MAY BE EXPECTING A LITTLE BIT TOO MUCH. I’M A 78 YEAR-OLD WOMANWAS IN GOOD HEALTHAND NOW BUY THIS MENTALLY CHALLENGING BECAUSE I WAS A VERY ACTIVE PERSON. MY EYES ARE ALWAYS BLURRED WATCHING TV GOING ON THE COMPUTER TRYING TO DO ANYTHING I FIND I GET UP THAT DULL HEADACHE.  MY OPHTHALMOLOGIST SAID I MAY HAVE TO ADJUST TO THIS. WE DID DISCUSS THE PRISM AND I DO WEAR A PATCH OVER ONE EYE SOMETIME TO TRY TO GET THROUGH THE DAY. I’M VERY INTERESTED IN TALKING TO OTHER PATIENTS THAT HAVE THIS AND SEE IF THEY CAN GIVE ME A FEW COPING SKILLS.  SORRY FOR CAN’T READ WHAT I’M DICTATING RIGHT NOW
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Year of birth | 1946 |
Gender | Female |
Location | New jersey |
Relationship | Patient |
How did you hear about us? | MG Website |
How long have you or the person that you are caring for had MG? | It’s been nine months since I’ve been actually diagnosed, but I’ve seen specialist for five years previous to that |
Privacy Policy and Terms of Use | I agree |