Profile

Name

Donna

Last Name

Kobylakiewicz

Nickname

Kut

Short Bio

I was diagnosed in December 2023 but had been going back-and-forth to doctors for five years previous to that January I have to go in for slight crisis. I was in for seven days receiving IVIG. IN JUNE, I HAD A COMPLETE KNEE REPLACEMENT WHICH WE COULD NO LONGER PUT A WHILE DID GET THROUGH THE SURGERY RECEIVING IVIG TWO DAYS FIVE HOURS EACH BEFORE THE SURGERY SINCE THEN I’M HAVING A HARD TIME WITH THE FATIGUE AND I’VE VYVGART , COMPLETING MY FIFTH CYCLE. I’M NOT SURE IF THIS IS HELPING ME BUT I MAY BE EXPECTING A LITTLE BIT TOO MUCH. I’M A 78 YEAR-OLD WOMANWAS IN GOOD HEALTHAND NOW BUY THIS MENTALLY CHALLENGING BECAUSE I WAS A VERY ACTIVE PERSON. MY EYES ARE ALWAYS BLURRED WATCHING TV GOING ON THE COMPUTER TRYING TO DO ANYTHING I FIND I GET UP THAT DULL HEADACHE.  MY OPHTHALMOLOGIST SAID I MAY HAVE TO ADJUST TO THIS. WE DID DISCUSS THE PRISM AND I DO WEAR A PATCH OVER ONE EYE SOMETIME TO TRY TO GET THROUGH THE DAY. I’M VERY INTERESTED IN TALKING TO OTHER PATIENTS THAT HAVE THIS AND SEE IF THEY CAN GIVE ME A FEW COPING SKILLS.  SORRY FOR CAN’T READ WHAT I’M DICTATING RIGHT NOW

 

Year of birth

1946

Gender

Female

Location

New jersey

Relationship

Patient

How did you hear about us?

MG Website

How long have you or the person that you are caring for had MG?

It’s been nine months since I’ve been actually diagnosed, but I’ve seen specialist for five years previous to that

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