• Jodi Enders posted a new activity comment 17 hours, 12 minutes ago

    Hello, Bruce! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

    Please familiarize yourself with our forum rules in…[Read more]

  • Jodi Enders posted a new activity comment 17 hours, 17 minutes ago

    Hello, David! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

    That’s great news to hear you’ve tolerated decreasing…[Read more]

  • Jodi Enders posted a new activity comment 17 hours, 23 minutes ago

    Hello, Graham! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. I am so glad you are at a point you can say MG has not…[Read more]

  • Jodi Enders posted a new activity comment 17 hours, 25 minutes ago

    Hello, Vicky! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. Please update us if IVIG treatment begins to improve…[Read more]

  • Jodi Enders posted a new activity comment 17 hours, 27 minutes ago

    Hello, Anita! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

    Please familiarize yourself with our forum rules in…[Read more]

  • Jodi Enders posted a new activity comment 17 hours, 28 minutes ago

    Hello, David! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. I am so glad to hear you still have a positive outlook…[Read more]

  • Jodi Enders posted a new activity comment 17 hours, 30 minutes ago

    Hello, Ryan! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. We hope you and your spouse benefit immensely from the…[Read more]

  • Jodi Enders posted a new activity comment 17 hours, 31 minutes ago

    Hello, Cindy! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

    Please familiarize yourself with our forum rules in the…[Read more]

  • Jodi Enders posted a new activity comment 17 hours, 32 minutes ago

    Hello, Mardi! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

    Please familiarize yourself with our forum rules in the…[Read more]

  • Jodi Enders posted a new activity comment 17 hours, 35 minutes ago

    My recommendation is to do your best throughout your MG journey to not judge your weight. Know it is out of your control, and remind yourself you are doing your best to stay healthy. Sometimes that means compromising our ideal weight to take medicines that may be life-saving. From personal experience, I had gone from weighing my most while on…[Read more]

  • Jodi Enders posted a new activity comment 17 hours, 40 minutes ago

    Well, my doctor takes about a week to reply, so I also would like a new one. However, sometimes if they are knowledgeable, we have to take what we can get with MG. In many regions scheduling with a new MG, a specialist can be difficult and dangerous. Switching your treatment into the hand of someone else, make sure you double-check all of their…[Read more]

  • In my column this week, I dive into trauma. Distraction may be a harmful coping mechanism developed to help alleviate emotional and/or physical pain people experience.

    With MG, we may feel that our trauma is in the past after our diagnosis, especially if new hardships are at the forefront of our thoughts. Initial interruptions can be…[Read more]

  • I flew for the first time round trip this past week. The primary safety violation I noticed that seemed to be something that is not necessary is allowing alcoholic beverages purchases on flights, especially those under a few hours.

    Maybe the lady next to me spilling hers got me thinking about it, but it seems that allowing people to have water…[Read more]

  • Jodi Enders posted a new activity comment 1 week, 2 days ago

    Hello, Janet! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. Is your current treatment helping at all to improve your…[Read more]

  • Jodi Enders posted a new activity comment 1 week, 2 days ago

    Hello, Vicki! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

    Please familiarize yourself with our forum rules in…[Read more]

  • Jodi Enders posted a new activity comment 1 week, 2 days ago

    Hello, Alice! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

    I am delighted to hear you have had a year of symptoms…[Read more]

    • Although I live in a small town, we have a good up to date hospital, and a medical center with a neurologist on duty 24/7 is only 35 miles away. I have never had a problem getting medical care during a crisis. When first diagnosed I thought crises would come on suddenly, but that isn’t the case. When I first start having symptoms, it takes a…[Read more]

  • Jodi Enders posted a new activity comment 1 week, 2 days ago

    Hello, Donald! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

    Please familiarize yourself with our forum rules in…[Read more]

    • Thanks for the note. It’s nice to communicate with others with similar issues I am on a starter dose of prednisone. I do feel better, but am hungry all the time. I want to lose some of the pandemic weight, but it a’int easy. Thanks again.

      • My recommendation is to do your best throughout your MG journey to not judge your weight. Know it is out of your control, and remind yourself you are doing your best to stay healthy. Sometimes that means compromising our ideal weight to take medicines that may be life-saving. From personal experience, I had gone from weighing my most while on…[Read more]

  • Jodi Enders posted a new activity comment 1 week, 2 days ago

    Hello, John! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. I recognize you from your other social accounts. We are…[Read more]

  • Jodi Enders posted a new activity comment 1 week, 2 days ago

    Hello, David! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

    Please familiarize yourself with our forum rules in the…[Read more]

  • Jodi Enders posted a new activity comment 1 week, 3 days ago

    Hello, Arnold! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. I hope you can wean off the medicines you wish and that…[Read more]

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