Short Bio |
mg for 10 or more
breath balance sight swallowing weakness at times arms legs neck,frustrated with doctors that just make 2 minute exam and say symptoms are not there or minamal.never doing repetitions to see muscle weakness. have had more than 40 breathing crisis but only 3 lasted over 3 hours so doctors could see. had plex paraparesis just had rutimulab (chemo) 580mg mestinon, weened off prednisone.62 on antibody test. frustrated that doctors say any more mestinon is bad, but more mestinon helps breathing.ย sorry to be dumping on ya’ll just frustrated with doctors that just take the word of supposed leading neuro specialist. thanks for listening have a blessed day
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How long have you or the person that you are caring for had MG? |
10 years
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