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Jana replied to the topic How Does MG Affect Your Relationships? in the forum Relationships & Social Life with Myasthenia Gravis 1 month, 1 week ago
I have had MG for 22 years since age 28 and relationships have been extremely difficult. Romantic relationships and friendships have been next to impossible to hold on to. As we all know it’s so difficult navigating this illness alone. The feeling of not being understood has plagued me from the very beginning. My own family never even tri…[Read more]
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Jana changed their profile picture 3 months, 2 weeks ago
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Jana changed their profile picture 1 year, 7 months ago
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Jana replied to the topic Using Disabled Parking, Bathrooms, Wheelchairs, Etc. With an Invisible Illness in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 9 months ago
When I began getting severe lower back pain on top of my MG I finally had to ask my neurologist if he would request a handicapped placard. Most days I do need to use it. I was actually confronted by a man in a parking lot ignorantly telling me that I wasn’t handicapped, as he had seen me walking in the store. I was so shocked by his anger th…[Read more]
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Jana changed their profile picture 1 year, 9 months ago
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Jana became a registered member 1 year, 10 months ago
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Hello, Jana! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. Hopefully, treatment eventually begins to help you!…[Read more]
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Hey Jana! I think you might resonate with these articles from our site on friendship and relationships with MG…[Read more]