| Short Bio |
- I developed Myasthenia Gravis as a college student. Struggled with it through graduate school, my early career, the newlywed years and the birth of my daughter…. With no formal answers. Was finally diagnosed at 34, and developed a large thymoma just a year later. Going through a divorce, back to grad school for a second time- while teaching in an inner city high school- and learning to co- parent internationally, all coincided with my MG becoming becoming more refractive. These days I’m sadly out on disability (not really loving this Medicade lifestyle) and trying to figure out who I am, now that my daughter is off at school and I haven’t got 173 students and 2 other art teachers depending on me. I love IVIG, hâte PLEX, think that Rituxan rocks, that prednisone should be used on anorexics (because hey, where the heck have those 15 lbs a year come from since I’ve been on it?!) and that the jury is still out on Vyvgart. I find something positive about every day, but have had a lot of tearful ones too, and I stopped counting my hospitalizations once they exceeded 38. I love reading about other ‘zebra stories’ (I can’t really get into the whole graceful snowflake analogy) and my goal this month is to get out of a wheelchair again and back into the pool at the YMCA!
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| How long have you or the person that you are caring for had MG? |
38 years
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